If your loved one has been diagnosed with Lewy Body Dementia (LBD), it can be a daunting experience. However, understanding the condition is the first step towards providing the best support possible. While the seven stages of Lewy Body Dementia can offer families a helpful framework, it’s important to remember that every journey is unique. Symptoms, progression and care needs can vary greatly from person to person, making it vital to prioritise individualised care. No matter where your family is on this journey, there are always ways to support your loved one while cherishing the moments you share together.
What is Lewy Body Dementia?
LBD is a progressive condition caused by the buildup of abnormal protein deposits, called Lewy bodies, in the brain. These deposits disrupt normal brain function, leading to a combination of cognitive, physical and behavioural symptoms. Unlike other forms of dementia, LBD can be characterised by symptoms such as fluctuating cognition, vivid visual hallucinations and changes in physical coordination. These symptoms can appear in varying combinations and intensities, often making diagnosis challenging.
Early recognition is crucial, as it allows families to seek appropriate support and plan for care that evolves with their loved one’s needs. At Group Homes Australia, we believe that understanding the unique characteristics of LBD is essential to providing care and support that preserves dignity, independence and quality of life.
Why every dementia journey is unique
No two people living with LBD will experience the condition in the same way. Symptoms may appear in different orders, progress at varying rates or fluctuate from day to day. This unpredictability can be challenging for families, support partners and carers, and it’s why we prefer not to be prescriptive about the seven stages of Lewy Body Dementia. As such, we’ll discuss this condition in terms of early, middle and advanced stages rather than the traditional seven stages.
Early-stage Lewy Body Dementia
In the earliest stages of LBD, symptoms can be subtle and not always easy to notice. Your loved one may experience mild memory lapses, difficulty focusing or occasional physical changes such as stiffness. This period is a chance to plan ahead and prepare for the future as best as you can.
Establishing routines can provide a comforting sense of structure while introducing simple strategies like keeping a calendar can help maintain independence. Families should also consider reaching out to resources like GHA’s Flexible Respite services to ensure their loved one has access to meaningful engagement and professional care from the very beginning.
Middle stages
As LBD progresses, symptoms often become more pronounced. Cognitive fluctuations, increased mobility challenges, and behavioural changes such as confusion or restlessness may emerge. This stage can be particularly difficult for families, but maintaining a person-centred approach to care can make all the difference.
Small but meaningful activities, like preparing a favourite recipe together or enjoying a light walk in the garden, can bring moments of joy and connection.
Advanced stages
In the advanced stages of LBD, individuals may require round-the-clock care and support. Mobility may decline significantly, communication may become more limited, and your loved one might be more prone to distress. While these changes are challenging, this phase is also a time to focus on comfort, compassion and creating a peaceful environment.
The importance of adapting to the home environment
A thoughtfully adapted environment can significantly impact the wellbeing of someone living with LBD. Simple changes like improving lighting, reducing noise and ensuring pathways are clear of obstacles can minimise confusion and enhance safety. Visual cues, such as clearly labelled cupboards or colour-coded rooms, can also make it easier to complete daily tasks.
Families and support networks
It’s essential for families to stay connected and involved throughout the LBD journey. Whether it’s attending appointments, sharing cherished memories or simply being present, your connection provides invaluable support. However, it’s equally important for families to look after themselves, too. Flexible Respite is an option to consider, while there are many support groups and resources out there to assist.
Cherishing meaningful moments throughout the journey
Even in the face of challenges, there are countless opportunities to create meaningful moments with your loved one. Sharing a favourite song, flipping through old photo albums, or enjoying the simple pleasure of a cup of tea together can provide comfort and joy. At GHA, we are dedicated to creating moments that matter, helping families focus on the positives and preserve their bonds.
Need support for your loved one living with Lewy Body Dementia?
Every dementia journey is unique, and finding the right support can make all the difference. At Group Homes Australia, we offer personalised Flourishing plans, Flexible Respite and permanent care options designed to meet your loved one’s individual needs. To learn more about how we can help, contact us today. We’re here to help your family through this journey together with compassion and understanding.
